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A 23-YEAR-OLD with a rare skin condition isn’t letting her disease stop her from doing what she wants – even getting tattoos. Paloma Lira from Sao Paulo, Brazil was born with congenital lamellar ichthyosis, a condition which causes the skin to become extremely dry and scaly. The genetic disease has no cure, and Paloma has to have a strict care routine to soothe her skin – especially during the hotter months. When Paloma was a child, she was frequently bullied for her skin condition – however now as an adult she refuses to allow anything to get in her way. She has even had tattoos and frequently tries out different makeup looks.
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Videographer/Photographer : Marilia Marasciulo, Bruno Oliveira Mazzoco
Producers: Shannon Lane, James Thorne
Editor: Ethan Edwards
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